12.38pm Thursday afternoon. Oops, sorry for not writing earlier (I am starting to get worried phone calls!). Until now, Hakan had been sitting next to Jaana in the mornings and I always called him to write something before I left for school. Now, when there is a night nurse, I did not do the same. Anyway...
Jaana woke up around 8.45am when I got in here and stayed awake until noon-ish. She is less tired today, which is great news. She has had the physiotherapist in the morning and walked twice to the sofa again. The occupational therapist focus more on sitting down and trying to keep balance, memory issues etc. Jaana lacks a bit of balance and needs to practice this as much as possible. She was very willing to do all exercises this morning. We are now resting a bit and waiting for the afternoon sessions to start (~2pm). After she spoke to her mother for 15 minutes, she pulled out the feeding tube (again!), which was refitted and then went for her nap. You can really see that she gets less and less tired which is the result of stubbornly waking her up during the days.
I also took her for a stroll around the ward in a wheelchair so she could see something else. Tomorrow I have arranged for her hairdresser to come by around 11am and will try to get manicure/pedicure arranged for early next week. Trying to find out where she goes for all this stuff is the hardest part (as all men we never really listen when you tell us where you go for these things...). If anyone of you here in Singapore knows, please assist me!
6.26pm Thursday evening. Today was very much a repeat of yesterday with the same execises. Practicing balance by sitting on the edge of the bed and trying not to fall (she can manage 20 to 30 seconds when she is not tired) and rolling in bed from one side to the other, walking with the help of a support frame for around 7m. I think that today she got less tired of the exercises and that is one improvment. Remeber that she also need to practice to stay awake! That might seem simple to all of us, but her part of the brain which controls our awake state has been affected. We need to exercise another part of the brain to take over that. Right now a friend from the embassy is with her, then later I am back for a while and then the night nurse again. I brought some normal comfy clother for her so I thingk they will change to those later in the evening. When I got back to the hospital in the afternoon, she had managed to pull out (completly) the feeding tube! The nurses/doctors let it be for an hour or so, but need to put it back in. As well for the food as for the medicine. Right now, this is the last tube in use. She no longer has any IV or catheter.
8.42pm Thursday evening. The night nurse has arrived and will stay with Jaana until the morning. Many nurses suggest restraining her movment (so she does not remove the feeding tube, did it again), which I will have nothing of. Jaana might be stubborn, but so am I. I think it is for their convenience (as with the catheter), but it is true that the refitting process of the same is something I leave the room for (not pleasent). I hope and pray that her swollowing muscles get better soon. She looks at piece when I left and she is sound asleep.
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8 comments:
Käraste Jaana,
sedan Jörgen ringde mig igår är du i mina tankar hela tiden. Jag tänker på din värme och styrka, din humor och sjyssthet, din glada och tydliga stämma, din generositetet och din klarhet, din goda smak, din förmåga att se det positiva i händelserna, din behagliga närvaro.
Så fint att allt går i rätt riktning, alla framsteg.
När jag gick i Nehru-parken imorse tänkte jag på våra rundor i Botanical Garden, alla bra samtal, hur vi trampade på reflexologistenarna, det gjorde ont under fötterna, men det gjorde samtidigt gott.
Vi ses i helgen, Jaana, kram!
Jörgen, hoppas du får några bra inputs för hand- och fotvård, jag är själv inte uppdaterad på det just nu.
Ludde, Totte, Camille,
Matilda hälsar jättemycket.
Kram från Delhi, Ulrica m familj
Hejsan Jaana o Jörgen,
Låter bra att det motoriska färdigheterna återkommer så snabbt. Kämpa på, lungt och metodiskt.
Flitiga Fingar på Döbelnsgatan är nog inte rätt svar men dit går Lollo.
Vi tänker på er
Peter o Louise
Kjære Jaana og Jørgen.
Jeg fikk melding fra Pete i dag, hvor han sendte ved bloggen. Det er vel unødvendig å skrive at dette var både overraskende og veldig trist. Jeg husker Jaana som en viljesterk kvinne, hvis det er noen som skal klare dette så må det være henne.
Jørgen, Jaana er veldig heldig som har deg ....
Klem fra Janicke
Dear Jaana:
I have been reading the blog and even scanning the Swedish messages! This is what I have understood so far:
Hei/Hej - Hi or Hello
Kram/Kramer - Love
Fantastikt - Fantastic
och - and
du ar - you are
Am I correct? I think even if you do not remember all of your English right now, you are a dictionary ahead of my Swedish!
You must be so pleased to be rid of the catheter and next will be that feeding tube. What are you dreaming of eating? A Swedish delicacy? A Singapore treat? Spicy Bajan fish? Something tangy or something sweet? For me it would be chocolate!! And then, some more chocolate!
Reading Jorgen's updates on the blog remind me of the song by Sting "Every Breath You Take" Do you know it? The lyrics of the chorus are:
Every breath you take
Every move you make
Every bond you break
Every step you take
I'll be watching you
I think it is Jorgen's and your song for this time so ask to hear it! Or even better have Jorgen sing it to you and join in!
As they say, all journeys start with a single step and it sounds like you are well started on yours. I hope it brings you back to Mangrove soon.
Thinking of you,
Melanie
Dearest JAANA,
I will come to visit you tomorrow. Can wait to see you !
Hugs & kisses
Heloiza
Jaana!
Glädjetårarna trillar, när jag läser om dina framsteg. Vi tar så mycket för givet och självklart, och det innebär så otroligt mycket arbete att lära sig alltsammans på nytt!
Det där matsonden är säkert otrevlig, så en sådan viljestark person som du vill förstås ta bort den! Jätteirriterande grej, som ännu så länge fyller en viktig funktion. Inget är vunnet, om du sätter mat och dryck i halsen!
Massor av hälsningar och kramar från Christina, Christer och Jane.
Hej faster Jaana,
hoppas du mar battre. kampa med traningarna. langtar efter dig och din goda ravioli. min nya skola ar bast.
kram qvintin/EL delfino
halsa Ludde,Totte,Camille och Jorgen.
Good morning Jaana,
I have, like everyone who knows you, had you on my mind constantly. With this I have been thinking about how people have always told me that MUSIC is a wonderful thing for my Autistic son. They are right, he and other brain injured children love music.Is it the way it makes them feel or is it helping their brains? It is proven both are the case...
I have been doing some research and this of course is something that Jergon can look into further for you but I found the following. If anything I am sure you would enjoy having a little background music of your choice sometime during the day.
Study Explains Why Music and rhythm therpay Can Help Stroke Victims Regain Language Capabilities
–Scientific Study First To Provide Insight For Future Research–
A dramatic new study from the University of Texas at San Antonio has uncovered a link between the music right side of the brain function and the left side of the brain that is used in language processing. The study also shows that music activates the cerebellum, challenging the 150-year-old hypothesis that this part of the brain (containing 70 percent of all brain cells) only controlled motor function.
Both of these findings are significant because they could aid in the rehabilitation of stroke and other brain trauma patients who have lost speech capabilities. Melodic Intonation Therapy, where people sing what they want to say to improve fluency of speech, is a primary method of language rehabilitation. This new research provides insight into the function of the right brain areas, or music areas, which are recruited by the left side of the brain during therapy. Understanding the relationship between the two will give researchers the tools to develop other music-based speech rehabilitation therapies.
It is estimated that 80,000 people develop a speech aphasic condition, or speech delivery problem, from strokes or other brain trauma each year.
Rhythm Therapy, is a non-manipulative unified system of color coordinates, sound enunciation, physical movements and the utilization of music, with an emphasis on rhythmic foundations. It is seems to stimulate growth of neural paths around damaged or dysfunctional portions of the brain, promoting harmonization of the left and right brain hemispheres. Rhythm Therapy has also been shown to enhance short-term memory, mind-body coordination, and to remedy impaired speech patterns.
http://abclocal.go.com/kgo/story?section=edell&id=5063560
Please also look at the above site for more info.
I hope this is of some help aside from all the wonderful care you have organised for you now.Keep up the great work, we are all so proud of your progress!! Love Danielle Reed xx
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