Tuesday, October 30, 2007

31st of October

2.00pm Wednesday morning. Jaana did not really finish all dinner yesterday, but had a full portion of salmon pasta, pain au chocolat, mango juice for breakfast. After this she headed down for her physio therapy. Later today she is getting her hand and feet done and should be feeling just fine afterwards. She had a a few teaspoons of coffee this morning and enjoyed the taste. One has to be very careful with her eating and mix all liquids with Thick'n'Easy. We can stop doing this in a month or so, but it is imperative that she does not get anything down her wind pipe. If that would happen she would need a huge and aggresive form of antibiotics which would not be good. All good until now!

Monday, October 29, 2007

30th of October

7.56am Tuesday morning. I will leave home shortly and head for the hospital after dropping the kids of at school. I will stop on the way and pick up some lunch for Jaana. Our trip back to Europe over Christmas is getting sorted out and for all of you in Sweden, you should be pleased to find out that Jaana will be at Humlegarden (Sigtuna) rehabilitation clinic from the 3rd until the 21st of December. We all believe this will be good for her and hope that some Swedish speech therapy will take effect. I will get back to you on more details of this later.

4.38pm Tuesday morning. Jaana is in a great spirit. She is smiling a lot (she knows she is coming home to her children soon) and eating and drinking superbly. As the cough is now 98% gone (it seems like quite a few here in Singapore have the same) she has less of a problem swallowing. Her balance is improving in snail phase, but still on the right track. As with a child who is just learning to crawl/stand/walk it takes it's time. If any guide from that, it would be fairly normal if it took 12 months for her to get her walking back to speed.

Sunday, October 28, 2007

29th of October

1.34pm Monday afternoon. Today, Jaana is a wee bit more tired than yesterday, but she is doing her therapy sessions as planed. Again, eating and drinking ok, and will have some quiche for lunch. I hope to be able to run over with some pasta later. Yesterday she ran out of home cooked food, got some fish balls again, and one could see she was not enjoying that.
I will not be able to go to her until later this afternoon, since I have a stack of things to do. I will report back as soon as I have been there and get a chance to write.

6.58pm Monday evening. I caught Jaana just in time before they were going to give her more horror food. She enjoyed 2 cheeseburgers from McDonald's with an grin of a child having the same for the first time ever. It was nice to see. Camille came with me and served mum some mango juice (with Thick'n'Easy (too make it a bit less dangerous for her to swallow)).
Tomorrow it is back to pasta again.
She looked rather tired in the end. She has not been drinking so much today, again due to being a bit sleepy. I also ordered her wheelchair today. Standard stuff, but with a bit foam in the seat for comfort. It should take a week or so, and by then we will be all more than ready to welcome her home again.

Saturday, October 27, 2007

28th of October

9.53am Sunday morning. Jaana had a good night sleep and has just finished breakfast. She is on track for another good drinking/eating session which will aid her coming home. Today, there will be only some light physio in her room so she should be able to get some rest as well. I will take the kids there in a short while, after which we all will head out for Sunday brunch. I will go back to the hospital later, but I think there will not be too much new to report today. I told her about how all is getting arranged for our move and what is happening around Christmas time and she is very excited about it with a big smile.

27th of October

8.30pm Saturday evening. A late report Saturday evening. Today Jaana has been drinking a lot. A total of 1300ml of water/juice and been eating a lot. Doctors are still happy with her progress and we are still on track for a 2 week return to home plan. Today's dinner was a deep-fried banana base , mango sautéed layer with bacon bits, fresh chilli padi, home cooked lobster with wasabi mayonnaise.

Friday, October 26, 2007

26th of October

6.31pm Friday evening. Again a late report. I find myself running around being busy and getting nothing done. That is not all true, but there is a s..t lot of things Jaana has been doing which I have not thought of (sorry all guys if I get you into trouble...). All stuff at home (paper work etc); Jaana has done all of it. I am getting organized, but it is not my strong point. Good thing she did such a good job before getting ill, since it is fairly easy to find.
Anyway, back to my dear wife. Today was a repeat of the last couple of days. In excellent mood, she finished a Quiche Lorraine, stole my doughnut, had some mango cheesecake and drank some mango/orange juice. The last couple of days she has had around 1000ml liquid which is just enough. Let's hope she keeps this up and she will certainly be home within 2-3 weeks.
Today I had a discussion about wheelchairs and other stuff which she needs. She is getting one made and it should be finished within a couple of weeks.
I wish you all a scary Halloween!

Wednesday, October 24, 2007

25th of October

12.47pm Thursday afternoon. This morning Jaana was in a good mood as well. Eating her scones and drinking her mango/orange juice. Yesterday she managed to drink 950ml of fluid which is fantastic. The doctors are still pleased of that they see this week. More later

Tuesday, October 23, 2007

24th of October

9.44am Wednesday morning. It is nice to write about something positive and sort of funny and this is such a day. Yesterday I suspected that Jaana was eating worse because of the hospital food. When I found out that they had served her mashed potatoes and fish balls for breakfast I freaked out. So they came around and asked me to write down what she wanted for breakfast. Obviously going for it I told them 'Freshly baked scones, double cream with strawberry jam'. The guy came from the kitchen an hour later and asked what 'scones' was. The ones of you who know me from the trading days, could imagine my reaction; soft and understanding. I told him what scones were, what ingredients they were made of, and where to buy them, should he fail miserably making them himself. Anyway, this morning when I came to the hospital, she had finished a bit more than one scone, 1.25 bottles of mango juice and everyone was cheering! Amazing what a bit of interesting food can do. And yes, I almost forgot, she had another 3 luxemburglies (for you who do not know them; http://www.spruengli.ch/Shop/schokoladen-geschenke.php?catalog=1001). A doctor saw everything and said 'Fantastic, let's try to get her home in 2 weeks'! For that to happen we need more mornings like this. I better go home and brush up those baking skills.
1.31pm Wednesday afternoon. Just wanted to continue the report in the same spirit. Jaana is in a fantastic mood today, a lot better than the last 10 days or so. It is really great to see. She is eating, drinking (600ml already), joking and smiling. Truly awesome turnaround. I was a bit worried before, but today we are firmly back on track.

23th of October

8.19pm Tuesday evening. I posted something earlier today, but it seems that it has all disappeared. Anyway, there is nothing special to report. I had a meeting with a few of the doctors today, and the main concern is the fluid. Just to make sure she has enough, she is still getting around 1l of extra through drop. I would like her to pick this up with in a week, since else they would insert either a smaller tube through the nose or one more comfortable one right into the stomach (!). So the best solution is for her to drink more. I talked to the doctors, and they are ok with bringing her home in 3 weeks, if she manages the drinking. Then a private nurse will be with her during the days, and we will watch over her during the nights. Rehab will bring all necessary equipment home so the training will not suffer.
We are maybe looking to extend her rehab in Sweden a few weeks, to the delight of relatives there i am sure. Not too long though, since I will miss her dearly and so will the children; but one needs to think of her progress and not be selfish.
She has not eaten excellent the last couple of days, but it is all down to the less than interesting food at the hospital. Therefore, we are bringing her home cooked stuff instead which she really seem to enjoy. Silvana brought some Luxemburlies, and today for dinner, she had 6!

Sunday, October 21, 2007

22nd of October

7.40am Monday morning. Conclusion from the colds the rest of the family have had, Jaana's cough should disappear in the beginning of the week. It is getting there and the drop might be removed again tomorrow or so. She still has it for some IV antibiotics and fluid. I will report more from the hospital around lunch time.

7.26pm Monday evening. Jaana was in a great mood today with plenty of exercise, food and high spirit. Parmi and Camille just headed over to the hospital to say good night. Not a lot more to report other than she stuck out her tongue to the doctors, which got everyone laughing for a while.

Saturday, October 20, 2007

21st of October

8.28am Sunday morning. I just returned from the hospital after spending the night. She slept most of the time, but did not really fall asleep until 10pm last night. The cough is still there, even though a bit better. She ate a lot yesterday and I think they will remove the drop today. Her swallowing is still a concern. The issue is that she is not swallowing fast and assertive enough. One need to stand next to her and really tell her. Sometimes, not so often, one can hint a notion of frustration and despair in her eyes. Her coming will be a big moral boost for her, but unfortunately, it is a few weeks away.

2.16pm Sunday afternoon. The physio session was done in her room this morning and this afternoon there will be some rest. She had some breakfast and now some lunch, but with some difficulty. I really hope she picks this up a bit, since I do believe it was done with a bit more energy before.

20th of October

3.54pm Saturday afternoon. A very late report today, but there is not much new to say. I will have a meeting with all doctors on Tuesday to make some soft of a plan for the next weeks to come. My aim is for Jaana to come home in 3 to 4 weeks. The only major hurdle to overcome for this is her eating. Nursing and all therapeutic sessions can be performed at home. I am sure she would love that. It is some time and effort way of course, but it is, from what I understand a very realistic target.
As many of you know, we are moving at the end of the year. This plan is still intact, but Jaana will make a somewhat longer stop (a month or so) in Sweden. This will allow me to sort out all relocation issues (and there are quite a few when you are not backed by Ericsson). Anyway, we (Jorgen, Ludde, Totte and Camille) are all very much missing Jaana here at home and are counting the days until her return.

Thursday, October 18, 2007

19th of October

9.47am Friday morning. Jaana had a good sleep and was heading down for physio as I left. She is doing well, but again has another urine infection. As this is her 4th urine bacteria since she came to the hospital (and she has always been pron to have them), the doctors are thinking of giving her permanent antibiotics for this. Again, this is nothing too uncommon, so it might be good for her to fix it once and for all. It does not seem to bother her too much, but it is hard to tell.

5.22pm Friday afternoon. As the issue with the swallowing is residing, Jaana has today focused more on the speech therapy which has until now been put aside a bit in favor of the more pressing issue of eating. She is making daily progress on all areas now, however though small they might be. The she will walk again, it is not just the effort made that day but the 60-70 days of hard work put in before. Her spirit is on top. Other than that, where is not much to report today. I will go back to the hospital in a an hour or so, from which i will make some final observation.

Wednesday, October 17, 2007

18th of October

9.01am Thursday morning. Jaana woke up when I arrived around 7.45 during my morning jog. She was in a good mood and had slept all night. She will be going down for physio as usual. Yesterday she was very strong, so let's hope it is as good today.

6.50pm Thursday evening. A bit late report today, but it is a good one instead! They checked Jaanas swallowing today by sticking a Video camera (nice right!) down her nose while she had to swallow. With this they could check if it was safe for her to eat proper food or if there was a risk for the food going down the air pipe instead. The conclusion was that it is indeed safe for her to eat, but when she was swallowing thickened water, it showed that a small fragment was in the air pipe. This did not worry the speech therapist (the commander in chief when it comes to swallowing) too much since it did not pass the point from where we make the voice for speaking. Instead the conclusion was made that the food goes down the right pipe, however though her swallowing muscles are weak and a bit delayed, so we need to remind her to swallow forcefully in the beginning. These muscles (as many others) needs to be retrained so I am not too worried. I made sure we have some of her favorite yogurt here so when she wakes up she can eat them. It is amazing what you learn of our bodies when these things happen! Strange we are even alive in the first place, with hole in our hearts healing when we take our first breath etc etc. Well anyway, the rehabilitation is full on and today she sat for 357 seconds and stood (supported her own weight with a frame) for over 200 seconds. Very impressive. Using a bit of statistical imagination, extrapolating the progress from yesterday, she will do a marathon in under 39min at around Christmas time! All in all, progress is obviously a lot slower than that, and sometimes things move slow, but her (and mine) spirit is high as is our motivation! There is only way from here...

Tuesday, October 16, 2007

17th of October

8.46am Wednesday morning. What a difference a cold makes! She is now getting a lot better with just a small, tail end cough left. No fever, a huge smile this morning and ready to rock! After breakfast she is heading down for the gym. Doctors still want to make this video test of her swallowing, which is a bit less pronounced than before. I do not see this as a problem, since it is a non-intrusive and fast check up. She will also get some more natural stimulus medicaments to try to increase her awareness somewhat, even though if it progresses like the last couple of days it will not be needed. I assume that if the swallowing tests come back of, they will take away the drop (does not seem to bother her that much)

6.59pm Wednesday evening. The doctors have rescheduled the test for tomorrow. Her couch is still there so they are still worried. I am of the believe it is more due to the cold. On the physio I can say that I witnesses her standing with the support frame for a record 100secs, but her sitting is less stable with around 10secs after having her 'lined up' correctly. They will try to feed her shortly so I will write one more report later to say how that ended up. All in all, another day with small and steady progress.

Monday, October 15, 2007

16th of October

8.52am Tuesday morning. I was out running this morning and as usual pass the hospital on the way. Jaana was just waking up and was heading for a shower and breakfast. She again seemed a bit better from the cold, but still has some irritating cough and flam.

11.02am Tuesday morning. Just to reconfirm the above, Jaana is much better today. The cold is still there, but she is beating it fair and square. She has had physiotherapy this morning and put in a good effort. I am sure she will be tired in the afternoon, but I will assure she gets another good night rest. The night nurse (who was in her room all night) confirmed she slept all night.

6.09pm Tuesday evening. I am writing this from Jaans room. Right now she is dozing off after a meal with her iPod. Tomorrow they will check with a video camera if her swallowing is good enough. They send down a tube 10 odd centimetres and have her swallow a few bits. All in all she is better today than she was a few days ago. Her alertness is still a bit weak and her speech has not improved, but that is the last thing which will come around.

8.12 Tuesday evening. Still coughing away a bit, but she is getting there. A good friend form the Embassy is here right now and holding her hand. It was very nice to see, since the same friend was here at a very early stage and was amazed with Jaana's progress. It is easy to ignore if you see here 4 times a days which I do. She is moving forward, but you have to step back a bit to see it rather than measuring every hour.

Sunday, October 14, 2007

15th of October

7.13am Monday morning. The kids have holiday this week so they will be over to see Jaana a few times. I am trying to make sure that only people with out a cold visit her, so Jonathan will have to wait a few days. Yesterday, Ritva Jaana's mother, arrived to stay for a 1 week. We went to the hospital yesterday evening and they spend some time together. Jaanas cold was a bit better yesterday, but she is still coughing quite a bit, which is irritation her. However though, she managed to finish her dinner which was excellent.

7.52pm Monday evening. Jaana had some therapy this morning but was very quickly tired. She then fell asleep after some food and was rather sleepy all afternoon. You can see that she is getting a lot better from the cold and I hope that it will be gone in a day or two. She had difficulty swallowing today and she must pick it up in tomorrow or so. In the mornings she is in a very good mood but she quivkly gets a bit tired. Her balance is improving and funny enough, her balance standing is somewhat better than sitting.

Saturday, October 13, 2007

14th of October

10.26 Sunday morning. Today Jaana is feeling a bit better, even though the cold is still present. She has a rather irritation cough, but she seem quite a bit more alert than yesterday. She will be given only drop today, and tomorrow I hope she can be back on the food/water on her own. Some physio will be done in her room as it is Sunday. If she is feeling better tomorrow, she will be going down to he exercise room.

Friday, October 12, 2007

13th of October

7.22am Saturday morning. It has now been exactly 1 months since Jaana was taken ill. Her progress has since been, as you know, slow but steady. The last couple of days I could see that she is a bit weaker than 2 weeks ago (she has been laying still for 4 weeks, so nothing strange there) but her balance is started to improve ever so slightly. What to work on should be awareness, balance and strength, and in that order. As I wrote so many times before, it is hard to build strength if you are sleeping. Anyway, she seem to have had a quite night (no phone calls) and I will head to the hospital soon.

6.40pm Saturday evening. On top of all things, Jaana has now attracted a big cold and has fever, cough, painful throat, so she is not really a happy camper at the moment. She is taking drugs to take some pain away, but since she is not eating enough, the doctors are back from around the corner and threatening of the feeding tube again. Back to the battle field!

Thank You

As I am getting overwhelmed by all love, support, thoughts, prayers and flowers, I feel the need to express my utmost gratitude to all of you.

It is very hard for anyone who have not been in a situation like this, to even imagine how much friends and family mean to oneself.

With many of you we have daily or weekly interaction, and with some of you we don't. This has not hindered you, in this dusk hour, to come forward and support us all. All efforts, thoughts and support is equally important regardless of you being physically close or not.

We are forever thankful for all what you do for us, and will never forget it!

Love
Jaana, Jorgen, Ludwig, Jonathan and Camille

Thursday, October 11, 2007

12th of October

10.26 Friday morning. Jaana slept ok during the night and I took all the kids to see her before they want to school. This was nice since she was wide awake and got to spend some time with them. She is still getting the drop and will probably do so until she is a bit more awake and if it is not bothering the physio sessions. I have talked to the CEO of the hospital and he apologized of what happened yesterday. We have agreed to that one of the ward nurses will be with her at all times when I or any of her fiends can not be there(i.e. late night etc). The problem with the private nurse is that we both feel that this concept do not really include them in the hospital nurse team. This leads to accidents (which obviously should not happen) like the one just happened. Anyway, all in good order and all quite on the western front.

7.30pm Friday evening. Jaana has been a bit sleepy today. I really hope this was just today and that she picks up the phase next week. It is a long weekend here in Singapore, so physio therapy will be less intense for a few days. Regardless, that is not the realy issue, but being awake and being able to consume food is more important. She is getting extra drop when sleeping so she does not dehydrate.

11th of October

5.35pm Thursday afternoon. Sorry for being late. This morning when I came to the hospital an incident had just happened. As Jaana was given a shower, she was left unattended for 15 seconds or so (I was told) and fell and hit herself. The issue is that her brain can not react and stop the fall, so she is just falling right into the shower wall and hurt herself. She got a big bump on her head, after which she was immediately sent down for a CT scan. It is very dangerous to get these kind of accidents when you are on Warfarin since the blood might not coagulate. Anyway, the CT scan showed no bleeding so that was good, but instead (always the silver lining) showed her sinuses being stuffed. Therefore, she immediately received medicaments for this. During all of this she was in a great mood and almost laughing with a big smile, while I was furious screaming/shouting (those of you who know me well would understand...). I will spend the night with her if no other arrangements will be made and will thereafter arrange appropriate care.
The physiotherapist told me this morning that yesterday was the first day they could tell a huge difference in her balance and effort! I was very pleased to hear that. They said that she showed good progress and was very much on the right track. Good news.
Furthermore to the procedure of the investigation of the hole between the chambers, the following could be mentioned. As the doctors are reluctant to proceed with the ultrasound tube through her mouth, due to her eating Warfarin, I put that on hold. Their issue is that if the tube would cause a small scratch and some bleeding would occur, they want her to stop taking the Warfarin. I do not particular adhere to the camp taking her off the drug since it is making her better, less likely to cloth and it was only after she stopped last time, this event happened. This will have to wait.
I hope you are all informed about today's events and can rest assure that she is doing better.

Tuesday, October 9, 2007

10th of October

10.27am Wednesday morning. Jaana is a in a good mood this morning. She ate a lot for breakfast and is now down in the physio exercise room. The doctors have scheduled a small procedure in a few days to figure out if she has (like 10% of us!!!) a non-closed flap between the heart chambers. We all have this flap, which is a short cut in the heart necessary when we are in our mothers womb. When we take our first breath this flap is closed by one chamber is having a higher pressure that the other. With time, this flap is then grown into the heart and seals the short cut. In around 10% of us, there is a case of this flat not closing completly or not strong enough. This is normally not a problem and most of us will never know. However though, when blood comes from the vanes, cloths should stick in the lungs (which is harmless), but with this flap not closed, cloths could skip over to the other chamber, not passing the lungs and then out in the arteries (and up to the brain). The medication for this is the same which she is already on, warfrin. In addition though, if they find this, they will close it with an 'umbrella'. This is a quite simple procedure which is done through the vanes (no open heart stuff! don't worry!) and should not take more than 30min. Should this not exist, we know that cloths could not have been formed in other parts of the body and transferred to the brain (lungs are in the way!). There you have it, a crash course in cardiology!

10.30pm Wednesday evening. Jaana was sound asleep when I left the hospital. I think she has attracted a small common cold as she has a runny nose, cough and is more tired than normal. She did not drink enough today (only 480ml) so the doctors decided to put in over night drop. This is fine since it will make her not to dehydrate and have more energy tomorrow to fight the cold.She did not even notice when the drop was put in. They will try to give her around 1000ml over night. Talking to the doctors about the above mentioned procedure, there are some other twists to it, so I decided to wait for a little while, as the medication is still being given.

Monday, October 8, 2007

9th of October

7.27am Tuesday morning. The night nurse was on duty last night and has not called, which mean she has been sleeping ok. Today she is scheduled to do another MRI scan (she has already done 2 and 2 CT scans). They want to see exactly what areas are effected and more important to again confirm that their is nothing new to worry about. The scan takes around 30min and you do not have to be sedated. The only thing is that one has to be completely still during this time. All should be fine.

8.52pm Tuesday evening. Sorry for not getting back earlier, but i just returned from the hospital. The MRI scan this morning was good. It showed that the affected areas had decreased in size. They doctors were very pleased with that. I talked to four of them today and all indicated that they were very happy with her progress. They tend not to predict any time frame for recovery and they only answer questions like 'Given the situation 3 weeks ago, are you happy with the progress so far or did you expect something else?' To this they all answer that they are pleased and if anything, we are a little bit ahead of schedule. I also asked the neurologist that if it was a realistic goal to have that she would with support of a frame/cane, be able to walk on her own in 6 weeks time, and he thought that would be realistic. So let's hope. Please understand that we are certainly not there yet. It is a long way and many hurdles to overcome, but with some stubberness and and a lot of energy she will get there. Jaana's left side is a bit weaker than the right. This is not of any significance and will be able to somce back. She can still move all parts of the body.
As she is very sleepy (and very hard to wake up at time (cold coke cans in the face, sitting in the wheelchair, wet towel in face, radio on 85% will not do it!), the doctors have suggested to make the morning sessions a bit easier so she has some energy left for the afternoon ones. I also asked to move the morning one earlier and the afternoon one later so she will be able to have 4h of sleep in between. Let's see if it helps.
Otherwise, she has been eating and drinking well today. She is getting very fed up with Ensure (a sort of energy vanilla/chocolate flavored drink) they give her for extra supplement. She gets croissants, cappuccinos, meatballs, luxemburgelies (!) brought to her which seem to do the trick.

Sunday, October 7, 2007

8th of October

6.47am Tuesday morning. Jaana slept until 4.30am this morning and then woke up and got her first energy drink for the day. Good to start early. After 30min or so, she fell asleep again. She will be well rested when she wakes up again for breakfast in an hour or so.

1.05pm Tuesday afternoon. Training sessions were performed and she is eating well. Yesterday she expressed delight when she got a croissant, so I think that will be the morning menu. The rehabilitation program is on track. First it is to practice the balance by moving beanbags from one side to the other. This trains the brain to compensate for the movement in weight from one side to the other. Also there is the practice of standing up with the frame. As she has not been walking, running, lifting heavy object etc for some time, one can note that her muscles have become a bit smaller. That is natural of course but needs to be regained with even more exercise. Thankfully, she was very strong when this happened so there is plenty of margin.

Saturday, October 6, 2007

7th of October

9.40am Sunday morning. I have just returned from the hospital spending the night. She woke up for a few hours late last evening got some fluid, but it is not enough. She only consumed around 600ml yesterday. Today she woke up around 7.30am and I immediately started feeding her. So today she has already gotten around 350ml, so hopefully a bit better. It is a restful Sunday today and she will be able to get some energy for next week. I will go back later tonight and will report more as the day goes by.

7.28pm Sunday evening. Today there was no special therapy and she has been resting. Food and drink wise, she picked up a bit in the afternoon so right now she was drunk around 850ml and has still not had dinner. So with a bit of luck, this will happen within an hour or so and then push it to around 1000ml. This should make the doctors some what happy, but they are a bit picky about that (understandably). Right now, Jaana is sleeping and has done so since 4.15pm. Not much to report really, more than things are progressing slowly. Speech wise, it is quite some bit to go. Her balance is getting better but she still is quite weak. I have to say though, she is tough and has started therapy earlier and with more willingness than most people (all according to the doctors).

Friday, October 5, 2007

6th of October

8.47am Saturday morning. A quite night, but Jaana woke up around 10pm and ate a bit. I need to rush to the hospital and convince the doctors not to stick the feeding tube back in since they think she is missing 200ml of liquid. I think it is better to push her to drink more when she is awake.

5.32pm Saturday evening. Today I have been with the kids during the day so I have not been able to give you a first hand report. Second hand though, is that she is very tired today and have been sleeping 3-4h in the afternoon. I will try to wake her up when I get to the hospital since she has only had 400ml liquid today. We need another 500ml or so in the evening. I think it will be alright since she has been awake for a couple of hours late in the evening. I will then be very forceful and get some energy drink into her. Anyway I will spend the night with her and will report more later.

Thursday, October 4, 2007

5th of October

8.22am Friday morning. Nothing special to report right now but I got a phone call late last night from the night nurse. Jaana had woken up and eaten quite a bit of dinner. Excellent! Later an SMS that she was back to sleep.

2.50pm Friday afternoon. Jaana was very awake today! Ate a lot of food had a 2h!!! training session, haircut/coloring, lunch and then a short nap. She was in a very good mood today and three friends came by in the morning, then a friend from Shanghai and last but not least Catherine. Although she gets a lot of visitors which might make her a bit tired, she really seem to enjoy the company if it is not too busy. I have asked if I could take a photo of her, and she agreed. I will post one very soon.

Wednesday, October 3, 2007

4th of October

7.43 Thursday morning. Nothing seem to have happened during the night so I will report later from the hospital. Today, I will bring Totte there for a some time so he can she Jaana doing her exercises in the gym. He was in the hospital the day it happened, so he will be able to so the huge difference.

1.42pm Thursday afternoon. It was great to see Jaana being awake when Totte came with me today. They hugged and kissed each other which was very nice. She was abit tired this morning I think from being awake so long yesterday. After her exercises, she went back to her room for a nap. I hope she will put just a little bit more energy into the afternoon sessions. She complained a bit about the food yesterday (some funny faces) so I brought some meatballs for lunch and will run over to her with a Quiche for dinner. Will report later if she liked it. Otherwise, one step at a time.

6.20pm Thursday afternoon. Sitting next to Jaana's bed. She is sleeping heavily, since I think the last couple of days has been tough therapy wise. The doctors came around and told it is good to not push too hard since she has already made such good progress. As weekend is around the corner, I think she will have some well earned rest. Silvana Edwards, a good friend of Jaana's is coming on Saturday afternoon, and I think she is already looking forward to it since she is smiling when we tell her.

9.14pm Thursday evening. Jaana is still sleeping after many attempts to wake her up. hopefully she will do so soon and can have something to drink and eat. I am still a bit worried that if she does not, the doctors will come running with that feeding tube again. We will see. I am handing over control to the night nurse and signing off.

Tuesday, October 2, 2007

3rd of October

8.10am Wednesday morning. Late last night Jaana was awake and had her dinner around 8pm. She was still going strong an hour after that, pulled the feeding tube which was refitted. She is since yesterday going to the rehab room for exercise. As soon as I can make 100% sure she is ok with it, I will post some pictures (this needs her consent though). She is getting regular showers now, so I think she is feeling a lot better as well.

1.16pm Wednesday afternoon. Jaana is still awake (since around 8am) after a busy morning. She is in bed and just about to doze of for a nap. Guess what, she is winning the battle of the feeding tube. After having pulled it out again this morning, but had pancakes, juice just after and a descent size lunch, the doctors have given the go ahead of not putting the tube back providing her fluid intake is sufficient. She needs to put in some good effort for dinner and some supplements later this afternoon. I think she is very pleased with herself and has a small grin on her face; 'I won'.
Camille will be coming around later this afternoon and Jonathan has two days off form school Thursday and Friday so he will spend one of them with me here at the hospital so see mom awake. She is now getting to take showers daily and is using a special chair doing the business. I think all of these things make her feel mentally a lot less sick and we are all cheering on!

10.31pm Wednesday evening. Today Jaana was awake from 8.30am to 9.15pm except for maybe a accumulated 2h nap. This is massive. You might be wondering why I am keep mentioning the time she is awake all the time. It is however during this time you can eat and do all rehab stuff, so it is of out most importance. In addition she finish her dinner (with some strange faces of dislike for the food) so tomorrow, I thought of bringing some home cooked food instead. And just maybe, a few bbqed cervalas will do the trick the coming weekend. The night nurse is on duty until tomorrow morning.

Monday, October 1, 2007

2nd of October

7.59am Tuesday morning. Nothing to report yet as I will be heading for the hospital very soon. I would assume she has been sleeping heavily and since I have not had any phone calls, there should be no problems during the night. Back in a few. Just quickly, I will not try to reply on any particular comments on my postings, but Marla, I could not even remember myself with help of photo albums, but I am sure, give it a week or two, Jaana will tell me all about it!

2.45pm Tuesday afternoon. Jaana had all the usual sessions in the morning and was awake for lunch as well. She fell asleep around 12.45pm but has to wake up very soon as the afternoon sessions will start imminent. According to the speech therapist (not just me), she has improved her speech a litle bit. There is plenty of more to be done, but we are getting there. Physio therapy is no longer done in the room, but she is wheeled down to the exercise room better facilities exist. Except for that, not too much to report yet. There are small steps of progress all the time, but the process is rather slow. More later...